Four simple letters F O O D. They can strike fear into the hearts of those whose lives are touched with PWS. At the very least, the way that we look at, think about and feel about food changes. Honestly, some of the changes are good. Like thinking about the nutritional value of the foods we buy and feed our family.
The frustrating part, however, is to realize how much food is EVERYWHERE. I do not look forward to the day that Ayden Jane feels truly hungry all day long. She is not yet there, but just knowing that it is lurking makes me notice...
So where are we now with regards to food? In an awesome place!! Ayden Jane is 5. Some kids start feeling hungry as early and 2 or 3 and I think I have read average is between 4 and 8. (totally not sure of those numbers..) I also know that there are some kids that hit their teens before it becomes a challenge. That is a lot of years of 'waiting for the other shoe to drop'.
So, for now here is a story that reminds me what a great place we are in. We decided to make cookies to send to Kayla at Clemson. Ayden Jane helped make the batter without even trying to take a taste. Then a plate of cookies sat on the counter for 2 days and yet it was like they were invisible to AJ. I know I did not do so well! A reminder that we still have no need for locks on our pantry or refrigerator and that Ayden Jane can handle making good choices. About the only thing she cannot resist is a banana. We even went by the bakery and picked out special things for grandma's birthday and Ayden Jane simply asked if there was anything there she could eat. I answered no, but you can have a banana at grandma's. She rejoiced!
I wish things could stay this way, but I know they likely will not. The hardest part is to remember to enjoy this time and not worry about 'some day' while at the same time, watching out and being prepared for it to come.