tag:blogger.com,1999:blog-7858587200636060230.post2031340756108340874..comments2022-10-29T02:34:57.378-07:00Comments on Amazing Adventures of Ayden Jane: FoodJanet Gulleyhttp://www.blogger.com/profile/06162344678840835262noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-7858587200636060230.post-56861765963903113012013-02-03T11:03:36.341-08:002013-02-03T11:03:36.341-08:00What I've known about the sneaking food/deadly...What I've known about the sneaking food/deadly appetite depends about many things, among them how PWS is managed during childhood. <br />But also on stress levels, on GH treatment etc etc...<br />I wish I could be very helpful about this point but unfortunately, I have no crystal ball to help you :(<br />And even if it's a rare case of figure, AJ may also not have the ravenous appetite. I could also know a family in my country whom the 10yo child does not have the ravenous appetite and she (the child) is 10yo. <br />I know that it's not the most frequent situation, but only to say that it can and does happen. <br /><br />And even if AJ's PWS is not as typical as it can be described, so what ? <br />She is still AJ and it does not make her PWS "less valuable" than a more typical child. I am not sure if it's English or not, and I don't intend to offend you.<br /><br />Many families need to lock the kitchen very early, some don't need even when the child is a teenager (I could read some blogs from UK where the family did not need to lock the kitchen, although it's not the most frequent situation). <br />It really depends on many things, and to some extent how PWS has been managed during infancy. <br /><br />I also think that if and when AJ displays food struggles, you will manage it awesome.<br />I am sure you can do it. Giulianoreply@blogger.com