One thing I really enjoy about the blog is I can look back over the year we just completed as I look toward the year to come. 2016 had some fantastic accomplishes and some very hard times.
The hard times are marked by my Dad's passing, Gary having major wrist surgery and being out of work, Noah with a total of 3 surgeries before years end, Mckenna ending up in the hospital for a week and Kayla patiently/not so patiently trying to figure out the next phase in her life. We are thankful that most of these things have settled, and hearts and bodies are all the mend.
There have also been many good things. First plane rides, first trips to roller coasters, visiting Boston and Chicago and Indianapolis. Cheering for Noah in person, as a family, for his last home soccer game.
For Ayden Jane, the triumphs add up. Her first honor roll at the end of second grade. Reading taking off, Swim team going well, Traveling to Boston with Kayla, Trips to see PWS friends across the country. Climbing to the top of the rock wall. Standarized test percentile ranks climbing. Making good friendships. Hunger nearly disappearing. Learning to monitor and maintain her own weight. Eyes improving. Conquering the monkey bars.
Looking forward, I can barely see through to the end of January. Coming up this month we are remodeling our kitchen. Annual review time at work with 41 IEP's to write and meetings to hold. Gary going back to work (hopefully confirmed tomorrow). High School soccer back in action for Mckenna. Swim team and (hopefully) girls on the run for Ayden Jane by the end of the month. A trip to see Dr. Miller and to Shriners's for a scoliosis check. Such a busy month it will be!!
Hopefully the rest of the year won't be quite so incredibly busy. I am thankful to have jobs and active kids. I am so thankful to get a much needed kitchen update. I am thankful for caring doctors even if travel is required to get to them.
There is much to hope for on the PWS research/treatment front as well... Not going into that right now, but I am truly excited and believe that one day, the last pauses and challenges brought to AJ by PWS will be put behind her.
Wow, here is to the start of a new year and tackling it head on!!
The hard times are marked by my Dad's passing, Gary having major wrist surgery and being out of work, Noah with a total of 3 surgeries before years end, Mckenna ending up in the hospital for a week and Kayla patiently/not so patiently trying to figure out the next phase in her life. We are thankful that most of these things have settled, and hearts and bodies are all the mend.
There have also been many good things. First plane rides, first trips to roller coasters, visiting Boston and Chicago and Indianapolis. Cheering for Noah in person, as a family, for his last home soccer game.
For Ayden Jane, the triumphs add up. Her first honor roll at the end of second grade. Reading taking off, Swim team going well, Traveling to Boston with Kayla, Trips to see PWS friends across the country. Climbing to the top of the rock wall. Standarized test percentile ranks climbing. Making good friendships. Hunger nearly disappearing. Learning to monitor and maintain her own weight. Eyes improving. Conquering the monkey bars.
Looking forward, I can barely see through to the end of January. Coming up this month we are remodeling our kitchen. Annual review time at work with 41 IEP's to write and meetings to hold. Gary going back to work (hopefully confirmed tomorrow). High School soccer back in action for Mckenna. Swim team and (hopefully) girls on the run for Ayden Jane by the end of the month. A trip to see Dr. Miller and to Shriners's for a scoliosis check. Such a busy month it will be!!
Hopefully the rest of the year won't be quite so incredibly busy. I am thankful to have jobs and active kids. I am so thankful to get a much needed kitchen update. I am thankful for caring doctors even if travel is required to get to them.
There is much to hope for on the PWS research/treatment front as well... Not going into that right now, but I am truly excited and believe that one day, the last pauses and challenges brought to AJ by PWS will be put behind her.
Wow, here is to the start of a new year and tackling it head on!!
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