Monday, November 14, 2016

PWS Pause

Ayden Jane is doing so amazingly well .... most of the time.

It goes like this. When she has had enough sleep, enough exercise, the right food, proper supplements, the right dose of meds, completely healthy, not too much to process ... she is quick witted, kind hearted, funny, deep thinking and an overall ray of sunshine.

An example of her wit would be last night. I told her I was going running but I stopped by the computer to shoot off a quick email. She called, "mom, I thought you were going running." I said, "I am." She giggled and said, "that doesn't look like running to me!" Then Kayla came in the door and I invited her to go run with me. AJ didn't even look up from the page she was coloring and said, "Well we all know that's not happening."

I suppose I should not encourage the sass and it may come back to bite me one day.

Most of the time, Ayden Jane operates in near top form and although it is a lot to balance, we have become quite good at maintaining the balance needed. At times, though, she just can't follow what you are saying or there are just too many things going on for her to process quickly enough. She has begun to recognize this for what it is. In the past, she would just argue with you and claim that her lack of understanding was your fault. Or just stop and stare, as if she is waiting for her brain to catch up to real time but it can't.

A few days ago I was trying to explain something to her when she was a bit tired. After I repeated the same thing for a third time and was getting impatient with her she tells me, "I hear the words coming out of your mouth but my brain isn't processing them." Wow. What a great description. I have also heard, "Can I say it one more time, please? I just can't get it off my brain."

These PWS pauses/glitches in her neurology are annoying. They make some days a challenge. If I put a positive spin on them, they also show how amazing Ayden Jane is thinking most of the time. They keep me from taking the other 90 percent of her day for granted.

No comments:

Post a Comment