Just like family, we are closer to some than others, but we deeply feel the pain each other suffers and we love to rejoice in each others triumphs. It amazes me how hard it is to hear that a little one is struggling with hunger issues, scoliosis, behavioral issues... you name it. Not to offend my friends who have all typical children, but seriously, it is ridiculous how it pains my heart to hear of the struggles our PWS kids. On the flip side, it can make my week to hear about how a little one finally has thrown aside his walker and is daily transforming into a full time, gettin' into everything walker. (Go Dean!)
I find myself a little bit addicted to cheering these kids on, praying for them, doing what we can to raise money for research. I sometimes wish I could just travel around and visit all of them. Since that isn't happening, I will just continue to enjoy pictures, stories and the connection we have walking this crazy journey.
So, to all those of you who are part of this journey because your personal family has been touched by PWS, I will be cheering for you! For all of you who are walking this journey with us simply because Ayden Jane has stolen your heart BLESS YOU. We can use all the help we can get.