Saturday, March 2, 2019

Schedules and Flexibility

Ayden Jane is having a fantastic year. I may say that at the beginning of every post because I will never get tired of typing that! I got such a kick out of her the other night as processed through a change coming up.

Her schedule so far this year was to have exploratory from 8-9 and then settle in to LA until recess time, somewhere around 11:30, give or take a few minutes depending on the day. So it is along academic block, but Ayden Jane has done fine with that. Recess and lunch puts them back into the classroom and hard at work from 12:30 - 2:30 for dismissal.

The change is simply to flip math and LA so that she will have math in the morning and LA after lunch. (and yes, social studies and science are in there as well, I'm just not exactly sure when) When Ayden Jane heard of the change her initial reaction was to get a bit upset. "But I'm doing so good! Why do they have to change things?" Ha, valid.

In the end, she asked me to be sure to include some math foods at breakfast (no clue what a math food is) and keep in mind she has LA after lunch so pack accordingly.  Sure kid. I'm on it. Hopefully she will have a great day Monday and will be 100 percent on board by days end. 

Saturday, February 16, 2019

Growing Up

Yep, I'm back. The full time work is done for now and I am hoping to get a bit of writing back on track.

Ayden Jane is really growing up. I'm not talking about how tall she is getting, even though that is happening too. I'm talking about her conversation. About dealing with social things at school. About caring for others. Okay, parts of her are growing up. There is plenty of her that still loves princesses, and fairies, and playing with toys, and imagination. I am thrilled those parts are content to stay young a little longer.

Growing up is challenging for any kid. Most kids have fears that other kids will laugh at them. Most kids worry that they will get picked on. Some kids worry about tests and grades. A few kids glide through pretty much unscathed but I think if we are honest, that is very few.

Now, how about heading into the wild world of growing up when you are a bit, "quirky, different, unique, weird, interesting, complicated, ...." just pick a word. These are the words that make fascinating and successful adults, but targets in school.

Over the years Ayden Jane has had her share of being made fun of. If that makes you gasp, breathe and think about it. SOME kids are just not nice. Some kids do not understand that all people are valuable. Some kids do not like others who are not the same as they are. She's had a bit of a resurgence of being on the receiving end of unkind words. We had a long chat about the stuff that is said and goes on in school. In the end though, here is what she had to say about it all:

1 - don't worry Mom. I know what he/they say is not true. God made me awesome.

2 - he/they are just mean. I think maybe they had a rough life but I'm not letting them take that out on me any more.

3 - if he/they were ever really, really, mean, C would punch them in the face. (I did NOT encourage this one. don't worry)

So there ya go. Confident, compassionate, protected. I'll take it. I mean, to hear negative things about yourself from your peers at age 11 and truly know and believe that those things are not true? To not lash out but to have at least some compassion for them?

Working on knowing when to ignore and when to speak out. - things like don't touch my desk or stay away from me. Although not nice, those you can just ignore. Calling you names, using bad language, threatening you, telling others to say bad things about you. - speak out.

Basically, Ayden Jane is a great kid. She is smart and perceptive and just when you think she is clueless, you find out she wiser than you could imagine. Some day she will be able to express all the cool stuff that rolls around in there. In the mean time, I enjoy the glimpses. 

Tuesday, January 1, 2019

It's Been a While

I am surprised how long it's been since I have posted. Well, sort of. In November I went back to work for a few months. Then December just full on flew out of control!

So to recap highlights, Ayden Jane managed straight A's for the first time. She was so proud of her all A's. She worked hard for it and totally earned it! As a reminder, she is in all regular mainstream classes and did not receive one bit of special education support the first quarter (more on that later)

Thanksgiving came and we had a nice family meal with all the girls. Ayden Jane does really well at these sorts of times and honestly, I just didn't worry too much about portions being a bit bigger. She was excited to bring over some keto candies that we made as a special desert and she was happy.

On to Decemeber. It was so very, very, very, beyond busy. With the rain and flooding of the fall, most activities were pushed into December and all the typical December excitement and Christmas things were mushed together with them. It was overwhelming for me and Ayden Jane loves to do EVERYTHING so we just over did it. On top of that we passed a nasty, long lasting cold around much of the family. So, much of December is a blur.

I think we FINALLY are putting together the last pieces of handling illness in Ayden Jane. She caught the nasty, snotty, cruddy, endless cold. She handled it pretty well the first few days and then, she didn't. It was like she hit a wall and in a matter of hours she went from okay to looking like a truck ran over her. Her skin color was bluish on her arms and the whitest white on her legs. She felt cold to the touch. Her energy disappeared and a headache came on strong. At that point, we went to the doc and he gave us a script for hydocortisone at Dr. Miller's recommendation. It was definitely the way to go! She turned around pretty fast and was back to fighting the cold well. After another week of fighting the cold we hit up the antibiotics since Ayden Jane has such a horrid ability to fight infection. In the end, Ayden Jane managed to kick the cold with no major complications. Woohoo.

It did, however trigger the strangest tics. She often fidgets her fingers quickly and sometimes makes a few odd facial movements when eating, but nothing life altering. Kayla nicknamed it chipmunking and with a reminder she stops Then this crazy uncontrollable ticiing came on. She could not stop it even when we pointed it out. It became nearly constant. After some thought, consulting smart folks, lots of reading, I decided to try treating it sort of like PANDAS even though I believe it was triggered by a virus rather than infection. Non of this is actually a PWS thing, it's a sucky immune system thing. Anyway, treatment is basically naproxen for inflammation and PharmaNAC because there is some evidence that it increases the effect of the naproxen. (and it can't hurt)

Sure enough,, after one dose of both Ayden Jane was more calm/movements more quiet. She told me after about 30 minutes when I went to check on her that she thought it was really helping because she could make it stop when she noticed she was doing it. That was yesterday and this morning it was still a bit better. I dosed her again and I really think it's working. So hoping she will be back to herself in time for school in 2 days.

She's one tough kid. One thing after another....