An entire week has gone by. Wow. It has been an unbelievably busy past couple of weeks. Work busy for both Gary and I. School busy for Ayden Jane and Mckenna. Kayla - well, sometimes you can barely tell she lives at home so is gone and doing so much.
Spring Break has finally arrived we and managed to pull out of Pawleys on Thursday evening after a full day of school and a quick trip to the beach and pool to help with the wiggles. I think I packed my stuff and Ayden Jane's medicines, supplements and food in about 20 minutes total!
We traveled all night long, which although exhausting, is a very efficient way to go. Ayden Jane did awesome. Kayla made a pnut butter sandwich for her with cashew bread before we left so when dinner time rolled around Ayden Jane could have that a some snacks from the cooler. The rest of us planned to wait and stop for a late supper after we had a few hours of travel under out belts.
All went according to plan and after our 'late supper' and bedtime snack for Ayden Jane she watched a bit of a movie and went to sleep. We were hoping she would fall asleep in South Carolina and wake up nearly to Texas.
Somewhere around 1:30 or so AM we stopped for gas (and coffee). Ayden Jane woke up and declared she could not go back to sleep. Now, before Pitolisant, no matter how sure she was she couldn't sleep, just put her in the car and she was out like a light. ha. No longer. She watched some more movie and read a little and finally did go back to sleep. She was great though. No whining or complaining. Just awake.
Morning came and she was wide awake and chatty. We talked (okay, she talked and I listened) for about an hour. She was just so excited to be on the trip and to see her grandpa, aunts and uncles and cousins. The excitement was escalated because she hadn't seen them since she was 3 and honestly couldn't even figure out who she was going to see. About 6:30 her belly time, we stopped for breakfast.
The rest of the way she was still great. She always wants to know how much longer, but that is nothing GPS can't handle. Traveling with a PWS kiddo, typically brings out the anxiety in them. So many unknowns. Typically, Ayden Jane travels well with me, but I do have to answer a lot of questions about where, when, how, who... well, everything. I have always just accepted that and made sure to let her know the plan, and let her be a part of any changes to the plan. This is a whole new level of go with the flow. I mean, there are 5 of us and a HUGE family is a part of the plan. We all know how flexible you need to be to handle that! I don't know that she could have enjoyed this trip nearly as much before Pitolisant.
Spring Break has finally arrived we and managed to pull out of Pawleys on Thursday evening after a full day of school and a quick trip to the beach and pool to help with the wiggles. I think I packed my stuff and Ayden Jane's medicines, supplements and food in about 20 minutes total!
We traveled all night long, which although exhausting, is a very efficient way to go. Ayden Jane did awesome. Kayla made a pnut butter sandwich for her with cashew bread before we left so when dinner time rolled around Ayden Jane could have that a some snacks from the cooler. The rest of us planned to wait and stop for a late supper after we had a few hours of travel under out belts.
All went according to plan and after our 'late supper' and bedtime snack for Ayden Jane she watched a bit of a movie and went to sleep. We were hoping she would fall asleep in South Carolina and wake up nearly to Texas.
Somewhere around 1:30 or so AM we stopped for gas (and coffee). Ayden Jane woke up and declared she could not go back to sleep. Now, before Pitolisant, no matter how sure she was she couldn't sleep, just put her in the car and she was out like a light. ha. No longer. She watched some more movie and read a little and finally did go back to sleep. She was great though. No whining or complaining. Just awake.
Morning came and she was wide awake and chatty. We talked (okay, she talked and I listened) for about an hour. She was just so excited to be on the trip and to see her grandpa, aunts and uncles and cousins. The excitement was escalated because she hadn't seen them since she was 3 and honestly couldn't even figure out who she was going to see. About 6:30 her belly time, we stopped for breakfast.
The rest of the way she was still great. She always wants to know how much longer, but that is nothing GPS can't handle. Traveling with a PWS kiddo, typically brings out the anxiety in them. So many unknowns. Typically, Ayden Jane travels well with me, but I do have to answer a lot of questions about where, when, how, who... well, everything. I have always just accepted that and made sure to let her know the plan, and let her be a part of any changes to the plan. This is a whole new level of go with the flow. I mean, there are 5 of us and a HUGE family is a part of the plan. We all know how flexible you need to be to handle that! I don't know that she could have enjoyed this trip nearly as much before Pitolisant.
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