Sunday, January 7, 2018


It may not seem like a huge deal depending on where you live, but most all kids in the south dream of the white stuff. Here, in coastal SC, it seems every 8-10 years we get a few inches of snow. Typically, the snow lasts about a day and then the temps rise right back to normal and it all melts away. This year, not so much. It has been a deep freeze here and the several inches of snow which fell on top of the layer of sleet and freezing rain have lasted for days!

Ayden Jane was so excited. She made a snowman, had a snowball fight and Gary even took her sledding! It was a golf course hill but when you live on the coastal plain, you find a hill where ever you can. There were other kids there and she had a blast. Only one near mishap when she was headed straight for the slightly frozen pond and apparently bailed off her sled just in the nick of time. The sled went out onto the ice then floated the ice on the other edge. Oh, did I mention her 'sled' was a boogie board? That's how beach kids sled.

Kayla and Mckenna were awesome and wandered the neighborhood through the snow and threw snowballs with her. Noah was less than impressed now that he has spent a few winters in the north.

So, here we are after just over 3 full weeks off school. No routine, a week of flu, Christmas excitement, snow and frigid temps... so many days of indoor activity. She/we are not used to this!!

She has learned to stay up late and sleep in. A skill I appreciate in the summer but I think it is going to be a rude awakening when she heads back to school on Tuesday. (schools out again tomorrow) It's cool that with Pitolisant the days of the 4, 5, even 6 AM wake up are gone!! At the same time, letting her get into the habit of sleeping in may not have been my best choice. It was wonderful for me though.

I will make an appointment to meet with her teachers this week. There are a few things we need to tweak from last semester. I was so spoiled last year with the bond Ayden Jane had with her teacher and the way her teacher just 'got her'. Not sure we will ever have that awesome a situation again, but I need to get my act in gear and help get the rest of this year back on track.

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