Settling In - New Normal?

I'm not entirely sure what happened to the month of May. We have been taking it a day or week at time and managing to make it to all the end of year events and squeezing in as much time on the beach and in the pool as possible. 

Ayden Jane has been at 18 mg for a month now. I feel like she is evening out. She is learning to control her new super powers and use them for good. She has days where she NEEDS a lot of big muscle movement and deep input. Craves the ocean, wants to rough house, can't sit still, talks loud and feels deeply. There is so much laughter. So much engagement with her friends and siblings (which is occasionally overwhelming) 

I measured her at 57 inches and 91 pounds. She has really grown! I dropped the rest of the ACL and so far so good. We are using very little lactoferrin, less iron, and she has no energy crashes even when we had supper an hour and half late! I asked her if she was okay or needed a snack and she said, "I'll be fine Mom. I don't crash with Pitolisant. I can eat whenever."

And of course she can't wait for summer!!!! 

The last week of school is upon us. It has been an amazing year. The difference in Ayden Jane from last November to this spring is like comparing two totally different children! She goes strong all day long, no naps, no lost hours due to needing to regroup. Awake until 8-8:30 every night and up about 6:30 in the morning. No constant night waking, which means no night waking for the Momma either :)

The arguing still exists but is much better and does not surface unless she is tired or trying to do too much. I don't mean PWS tired, I mean, typical, huge days of beach and pool and friends and water parks tired. 

It is interesting to watch her work through how to do life now that her brain works faster. She is going to need to learn to give people space, to slow down the conversation, dial back the intensity, to let things go. She has spent nine years fighting with every ounce of her being to keep up, to be a part of the conversation. She learned how to manage life that was always a tad faster than she was made to go by working so hard, concentrating hard to understand, working hard physically to keep up, relying on effort and the things she did well to get by. That same intensity and effort now can get a bit obnoxious. What should we do now? That's not how you ____. Constantly and inch a way from whoever she is playing with. Often a bit "in your face". I am hoping her good friends will have patience with her but also that they will be straight with her. and nicely help her get up to speed on these things  

Let the fun begin!