Wednesday, September 13, 2017

School Adjustments and Scoliosis

Ayden Jane is still loving school, which is wonderful. We have put hurricane Irma behind us. It was a little stressful, but more in a, will it come here and we go on a trip? Or will it go elsewhere and leave us to go to school sort of way. In the end, we didn't get to go away and we did miss a bit of school...

The return to school has added a bit of weight to Ayden Jane which honestly makes me more crazy than it should. It happens most every year and on top of that, we are remodeling our kitchen and eating out entirely too much. I guess it's all to be expected. 

This week she has started back to swimming and she is very excited to play soccer again this fall. She took a year off since she just could not stay awake long enough in the day to even go to practice last fall. Hopefully, once we are all back in the groove she will lean back out. Then again, it is entirely possible she is just adding a bit around the middle before she shoots up. These are the things that cause sleepless nights for PWS parents/ I'm worried and I should _____. No, she's fine and I need to not stress us all out. But I need to catch it before it gets out of hand. But maybe she is being a typical kid trying to store up and grow. ugh.

Next week we head to Shriner's Greenville to check on the scoliosis. Last January Ayden Jane's curve was measured at 12 degrees. That does not sound like a lot, but it was a significant increase and she is at the age where the spine grows quickly so the docs were not happy. 12 degrees was still in the "monitor" range. As we were leading up to our appointment in January, I was noticing her using poor posture when sitting on the floor. It was winter and we had not had a lot of activity and it was just prior to beginning Pitolisant. We/she corrected the poor habits of sitting posture. Summer and lots of activity came along. Pitolisant has seemed to improve tone. Here's to hoping for good news next week!!  If the curve increases to 16 degrees she will have to begin night bracing. Please no!

No comments:

Post a Comment