Whew. We are in the home stretch of our kitchen remodel. What exactly dose that mean? It means 3 months after demolishion, I have counters, a sink ... a fully functioning kitchen. Still needs paint. Still needs some carpentry completed. Still needs to be painted. Stil needs a few odds and ends and I still need to unpack some boxes and find things but I can finally cook again.
For Ayden Jane's part, she has done amazingly well. It is common for kids with PWS to get very nervous when routines are messed with, particularly those that involve food. For the most part, she has just rolled with it. It got so bad at the end, I hadn't made many of her typical standbys to have on hand and she was still rolling with it.
I will say, the large amount of eating out has not been the best for her weight and health, but things have not gotten out of control so I consider that a victory! I am looking forward to getting her back to good quality food and lots of vegetables. We shall see if I succeed.
Ayden Jane wants to start running again during December and January. Swim team is done this week and soccer is over for the fall. She is thinks it will be easier on Pitolisant and she remembers how much it helped her when she was running before. For my part, I told her I would run this crazy run with her http://www.the5kfoamfest.com/ . It is in March so she has 3 months to 'train' for the 5k.
Her plan is to do the running plan we found once before that will get her up to about 2 miles by the time we see Dr Miller at the end of January. Then switch over to a 5k training program that will get her to 3 miles. Wish me luck because we all know who will be running along side of her...
For Ayden Jane's part, she has done amazingly well. It is common for kids with PWS to get very nervous when routines are messed with, particularly those that involve food. For the most part, she has just rolled with it. It got so bad at the end, I hadn't made many of her typical standbys to have on hand and she was still rolling with it.
I will say, the large amount of eating out has not been the best for her weight and health, but things have not gotten out of control so I consider that a victory! I am looking forward to getting her back to good quality food and lots of vegetables. We shall see if I succeed.
Ayden Jane wants to start running again during December and January. Swim team is done this week and soccer is over for the fall. She is thinks it will be easier on Pitolisant and she remembers how much it helped her when she was running before. For my part, I told her I would run this crazy run with her http://www.the5kfoamfest.com/ . It is in March so she has 3 months to 'train' for the 5k.
Her plan is to do the running plan we found once before that will get her up to about 2 miles by the time we see Dr Miller at the end of January. Then switch over to a 5k training program that will get her to 3 miles. Wish me luck because we all know who will be running along side of her...
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