Sunday, November 5, 2017

Over Due Update

Time is flying by. Ayden Jane is doing well She seems to have really hit a groove this past week.

She brought home testing results from last spring's standardized testing. She has met grade level expectations across the board. Language, reading and math. She also had lexile score which placed her in the 73rd percentile and a math quantile which placed her in the 89th percentile. Yep. That pretty much blew me away. I think her 3rd grade teacher gets TONS of credit.

We managed to get through Halloween this past week. Ayden Jane loves Halloween. She dresses up and trick or treats with reckless abandon. She is convinced that the more candy she piles up for the Great Pumpkin, the better/more toys she will get in trade! The excitement that builds can get a little out of control. I blame it on being a holiday that doesn't start until late in the evening... That is just cruel. Having to wait all day long!

Just to up the excitement of life a little, we finally made good on our birthday promise to Ayden Jane. All she wanted to do was the ropes course. We took her friend G and off we went. It was a challenging course and after 2 hours, one potty stop which, of course meant we had to start over, and a lot of panic, we completed the entire level 1 course. It was so much fun and Ayden Jane did great! She is ready to go conquer level 2 next time. I hope I am up for the challenge!

My favorite quote of the day. As the girls were playing on some bars wating for our turn, Ayden Jane says: G, how do you do that so easy. Oh, I bet you have all your chromosomes. I'm glad I'm strong so Prader Willi Syndrome can't stop me! The positive attitude and determination are amazing. No whining, no 'not fair'. Just a truly thankful heart that she is strong and can do anything.

Mostly, life is summed up as a bit complicated, but totally doable. Ayden Jane still has no ability to be rushed. She still loves to thourghly discuss a topic before doing what needs to be done. She still can get a little stuck the moment you need her to process smoothly and quickly. Honestly though, I think we are getting to the point where some of these things are less PWS related and more quirky Ayden Jane things.

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