A few parents of kids with PWS have researched, checked with their doctors or dieticians and decided to try MCT oil for their kiddos. We gave it a go as well, starting at a very low dose for her size ect. I wanted to give it a fair shot and not just a day or two so we slowly worked our way up until we were at 1 tsp per day.
What did I decide? Not good for Ayden Jane. I don't understand exactly how it is supposed to work internally but I know that it is derived from coconut oil. I figured if Ayden Jane does great on coconut oil then she should do super on MCT. Also, I had heard a few other parents have great success with it. I found that Ayden Jane has significantly less energy and stamina on MCT. I tested it a few nights with our 5k training. She was able to run and walk much less.
I also found her to have less focus and be oppositional. I mean more oppositional that usual :) She had homework to do and it was an all out war. It has never even been a small battle before.
She was tired and slept more. She was hungry. She typically is not hungry. I know that sounds strange to say of a kiddo with PWS, but she would rather play most of the time. She gained a bit of weight on the MCT.
Any good stuff? Yes. I think her conversations were deeper. I know she was able to memorize longer songs. There is something to it, but Ayden Jane cannot handle it.
What did I decide? Not good for Ayden Jane. I don't understand exactly how it is supposed to work internally but I know that it is derived from coconut oil. I figured if Ayden Jane does great on coconut oil then she should do super on MCT. Also, I had heard a few other parents have great success with it. I found that Ayden Jane has significantly less energy and stamina on MCT. I tested it a few nights with our 5k training. She was able to run and walk much less.
I also found her to have less focus and be oppositional. I mean more oppositional that usual :) She had homework to do and it was an all out war. It has never even been a small battle before.
She was tired and slept more. She was hungry. She typically is not hungry. I know that sounds strange to say of a kiddo with PWS, but she would rather play most of the time. She gained a bit of weight on the MCT.
Any good stuff? Yes. I think her conversations were deeper. I know she was able to memorize longer songs. There is something to it, but Ayden Jane cannot handle it.
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