I have so much to say, but I think I will just post Ayden Jane's questions along with Dr. Miller's answers for tonight.
AJ: How do you know how much your body needs in a day to be healthy? and how do you decide how much of each kind of food?
Answer: Based on how tall ou are, how fast you are growing, and how much you weigh (compared to how much we want you to weigh), doctors decided how many calories you need in a day to keep you healthy. For you, personally, it should be about 9 calories/cm of height/day.
PLEASE: notice that things like numbers of calories are specific to each person so if you are unsure find a doctor to help you calculate what your unique body requires.
AJ: Why can my body not use some sugars - like bread and cookies but it can use other sugars - like fruit? How do you know?
Answer: The difference is in the type of sugar found in these things - fruits have fiber in them, that allows the sugar to be digested more slowly in you rbody, so the sugar can be used for energy vs. turned into fat. If you eat what is called "simple sugars" which are grains, cookies, potatoes, pasta, they do not have fiber and so get digested quickly, which causes your insulin to increase a lot and that turns all of the calories directly into fat and also causes your blood sugar to fall lower and the fall in blood sugar will make you more hungry.
AJ: What is bad about fake sugars if they do not make me feel bad?
Answer: Fake sugars do exactly what simple sugars do to your digestion - they cause a huge release of insulin and insulin causes all calories to turn into fat and also causes your blood sugar to drop.
AJ: How many grams of sugar is too many? per day? per meal/snack?
Answer: It depends on the person, but in general, I like to keep the amount of sugar at <30 day.="" grams="" p="" per="">
AJ: Why does my belly tall me I'm hungry sometimes even when I know I already ate?
Answer: Unfortunately that is part of Prader-Willi syndrome, but it can happen to all of us. It tends to happen when we are sick with a cold, when we are tired, and if we eat too much sugar or fake sugar. The only way to fix it is to eat a small amount of protein (a bit of cheese, a few nuts) to settle your stomach and then that feeling will go away.
AJ: Are you close to having the medicine to fix my Krebs cycle?
Answer: Yes - the study for the medication that should help it will hopefully start in December.
AJ: How do you know how much your body needs in a day to be healthy? and how do you decide how much of each kind of food?
Answer: Based on how tall ou are, how fast you are growing, and how much you weigh (compared to how much we want you to weigh), doctors decided how many calories you need in a day to keep you healthy. For you, personally, it should be about 9 calories/cm of height/day.
PLEASE: notice that things like numbers of calories are specific to each person so if you are unsure find a doctor to help you calculate what your unique body requires.
AJ: Why can my body not use some sugars - like bread and cookies but it can use other sugars - like fruit? How do you know?
Answer: The difference is in the type of sugar found in these things - fruits have fiber in them, that allows the sugar to be digested more slowly in you rbody, so the sugar can be used for energy vs. turned into fat. If you eat what is called "simple sugars" which are grains, cookies, potatoes, pasta, they do not have fiber and so get digested quickly, which causes your insulin to increase a lot and that turns all of the calories directly into fat and also causes your blood sugar to fall lower and the fall in blood sugar will make you more hungry.
AJ: What is bad about fake sugars if they do not make me feel bad?
Answer: Fake sugars do exactly what simple sugars do to your digestion - they cause a huge release of insulin and insulin causes all calories to turn into fat and also causes your blood sugar to drop.
AJ: How many grams of sugar is too many? per day? per meal/snack?
Answer: It depends on the person, but in general, I like to keep the amount of sugar at <30 day.="" grams="" p="" per="">
AJ: Why does my belly tall me I'm hungry sometimes even when I know I already ate?
Answer: Unfortunately that is part of Prader-Willi syndrome, but it can happen to all of us. It tends to happen when we are sick with a cold, when we are tired, and if we eat too much sugar or fake sugar. The only way to fix it is to eat a small amount of protein (a bit of cheese, a few nuts) to settle your stomach and then that feeling will go away.
AJ: Are you close to having the medicine to fix my Krebs cycle?
Answer: Yes - the study for the medication that should help it will hopefully start in December.
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