A while back. I mean a long while back. At least a year back, I tried giving Ayden Jane MCT oil.
Wait, let me start with a little background. MCT oil is a medium chain fatty acid that is derived from coconut oil. Several families have used it with great benefits cognitively and in energy. It also tends to be harsh on the gut so it needs to be started very slowly.
Now, back to my story... Over a year ago I tried giving Ayden Jane MCT oil. I gave her a small dose and she proceeded to fall asleep. Next day? Same thing. And yep, three for three. It was obviously not giving Ayden Jane the typical energy boost. It just made me uncomfortable so I abandoned ship.
I have been thinking about it and wanted to give it another shot. I decided the two week break where Ayden Jane would pretty much be attached to me 24/7 would be a good time. I started low. In fact, the first day I only gave her 1/4 tsp. Over the two weeks I have managed to get her up to 4 tsp split out over the day.
I give her 1 1/2 tsp in the morning (actually going to 2 tomorrow). 1 1/2 tsp. at lunch and finally 1 tsp around 3 pm with her after school snack. Getting it in her lunch now that she is at school is a bit tough but until I can get her single doses up to where I can do before and after school, I will just have to figure it out.
So what have I seen as a result? Well, I had to go up pretty quickly because I wanted to get her dose up towards where I wanted in the two weeks. The rough patch came during the second week when she started having a bit of trouble sleeping. Basically her brain just kept going like crazy even at night. She was wide awake and had important questions or vivid dreams that interrupted her sleep. It took a few days for that dose to settle in and I think I like it. She is back to sleeping well and seems to have great mental energy all day long.
I checked with Dr. M about dosing amounts and tips. She said that there weren't really dosing guidelines per se but that she recommends 2-3 tablespoons spread throughout the day. Honestly, I was really surprised she was talking in tablespoons! We are trying to get there. Also, she said that there is some evidence that shows MCT has a ghrelin inhibiting effect. This is an awesome thought for PWS as the levels of ghrelin are know to run high. (thought to be a piece of the hyperphasia puzzle or at least a clue)
Starting tomorrow I should be getting close to 2 tablespoons. Here's hoping it goes smoothly.
Wait, let me start with a little background. MCT oil is a medium chain fatty acid that is derived from coconut oil. Several families have used it with great benefits cognitively and in energy. It also tends to be harsh on the gut so it needs to be started very slowly.
Now, back to my story... Over a year ago I tried giving Ayden Jane MCT oil. I gave her a small dose and she proceeded to fall asleep. Next day? Same thing. And yep, three for three. It was obviously not giving Ayden Jane the typical energy boost. It just made me uncomfortable so I abandoned ship.
I have been thinking about it and wanted to give it another shot. I decided the two week break where Ayden Jane would pretty much be attached to me 24/7 would be a good time. I started low. In fact, the first day I only gave her 1/4 tsp. Over the two weeks I have managed to get her up to 4 tsp split out over the day.
I give her 1 1/2 tsp in the morning (actually going to 2 tomorrow). 1 1/2 tsp. at lunch and finally 1 tsp around 3 pm with her after school snack. Getting it in her lunch now that she is at school is a bit tough but until I can get her single doses up to where I can do before and after school, I will just have to figure it out.
So what have I seen as a result? Well, I had to go up pretty quickly because I wanted to get her dose up towards where I wanted in the two weeks. The rough patch came during the second week when she started having a bit of trouble sleeping. Basically her brain just kept going like crazy even at night. She was wide awake and had important questions or vivid dreams that interrupted her sleep. It took a few days for that dose to settle in and I think I like it. She is back to sleeping well and seems to have great mental energy all day long.
I checked with Dr. M about dosing amounts and tips. She said that there weren't really dosing guidelines per se but that she recommends 2-3 tablespoons spread throughout the day. Honestly, I was really surprised she was talking in tablespoons! We are trying to get there. Also, she said that there is some evidence that shows MCT has a ghrelin inhibiting effect. This is an awesome thought for PWS as the levels of ghrelin are know to run high. (thought to be a piece of the hyperphasia puzzle or at least a clue)
Starting tomorrow I should be getting close to 2 tablespoons. Here's hoping it goes smoothly.
Hello
ReplyDeleteI was wondering if you could give me an update on how ayden is getting on with the oil and what differences you have seen