1 - 6 months

Our journey began to smooth a bit after we were home. It was still scary, but the business of life with 4 kids... We just had to keep going. Ayden Jane was weak, but holding her own weight wise. We kept up the schedule of feeding high calorie formula every 3 hours and stressed over every ounce, but it eventually got easier. We went to follow up appointments and even were tested for PWS early on, but everything came back negative. Ayden Jane slowly began to get stronger and we finally got to meet that adorable little personality bit by bit. These are some pictures of AJ around 4 months when she first started to 'wake up.' (with a little help from a friend)

We really felt like maybe, somehow, whatever was going on with Ayden Jane was something that was somehow healing. Don't get me wrong, she was definitely delayed and floppy. She was still difficult to hold and had little head control. She still did not really cry like other babies. She still did not 'ask' to eat. She still slept a LOT. Our emotions were on a constant roller coaster. On one hand she had come so far, but on the other we had no idea what we were up against. We worried that whatever caused her to slip away from us the first time would somehow happen again at any time. Little did we know what lay on the horizon.