Things Come and Things Go

Almost as mysteriously as Ayden Jane's issues came the past couple of days, they have gone. It is truly bizarre. Yesterday morning was the last of the 'episodes'. We were at the tire shop (whole other story!) and AJ was happy and funny and climbing all over me in the waiting room. 10 min. into climbing on me and spinning around and just being a 3 year old she wandered over, sat in the chair turned pale grey and fell 'asleep'. Asleep is the only word I know to use, but those with PWS kids know the sort of 'sleep' I am referring to. The sudden so asleep that bombs could go off around and they still could not become alert. She was sweaty and clammy (in the air conditioning). She came out of it in about 20 min or so and that was the end of it....

So strange. It was the 3rd time in 24 hours! By yesterday afternoon, after she ate a great lunch and took her usual short nap, she decided to head outside to play. She bounced and swung and rode her bike, no crash. Gary took her swimming and she did fall asleep on the way home, but the normal, I swam hard sort of sleep. Then she played up at the soccer field for 2 hours with not overheating... WEIRD.

So, it seems to have gone as quickly as it came. I asked Dr. Miller about it and she mentioned the possibility that her cortisol response to the illness was delayed. Here is what she had to offer on the matter:

If the cortisol response is occuring now, then it will cause high blood sugar (which will make her feel nauseated and not want to eat). It may also cause her blood sugar to be abnormal with exercise, which could explain the temperature thing.

I mentioned this to our PT, Jen and she said that it would totally fit what she has seen in her 'mito and metabolic kids' and definitely describe the puddle of mush that melted in her arms on Wed. Crazy PWS.