I haven't said much about food with Ayden Jane. That is a little odd since that is a large part of what is effected in PWS. There are different ways to approach keeping our kids lean and healthy. Many folks work hard to balance calories using weight gain or not to guide how much to feed their children. We started early on to try a different path. It was mostly because I found the arguments for 'going paleo' compelling, but honestly in part because I found it easier to manage. Basically, we have food rules. Ayden Jane may eat ______ but may not eat grain products. We feed her every 2 1/2 to 3 hours, but do not push her to eat a large quantity just something. At times when we let her play too long without eating or if she takes a nap without a snack first she is really cranky. She usually will fight eating at this point and it takes some coaxing to get her restarted. Once she gets some protein or good fats in her she returns to her old cheery self. When she is done we clear it away and send her off on something else. It works for us. What is interesting is it seems we are not alone.
I had an e-mail conversation with Dr. Miller. I would post it, but I have not asked Dr. Miller about that so I will just describe it. She has seen in her clinic others who have kids close in age to Ayden Jane on the same style diet. One is eating 1600 calories per day and another 1300 and she reports they are both thin. They are eating approximately the same as their siblings. This is not the norm for kids with pws.
Following the 'food rules' in our house is not fun and I am sure that as Ayden Jane gets older it will be more difficult, but it is obviously working for her.
No comments:
Post a Comment